The following groups may provide helpful information and resources to patients with Cushing's Syndrome.

Cushing's Help Community
13222 Point Pleasant Drive
Fairfax, VA 22033
CushingsHelp@gmail.com
www.cushie.info
www.cushings-help.com
Tel: 781-626-6667

Cushing's Support and Research Foundation
65 East India Row
Suite 22B
Boston, MA 02110-3389
cushinfo@csrf.net
www.csrf.net
Tel: 617-723-3674
Fax: same as phone

Pituitary Network Association
P.O. Box 1958
Thousand Oaks, CA 91358
administration@pituitary.org
www.pituitary.org
Tel: 805-499-9973
Fax: 805-480-0633

The Endocrine and Metabolic Diseases Information Service
6 Information Way
Bethesda, MD 20892–3569
endoandmeta@info.niddk.nih.gov
www.endocrine.niddk.nih.gov
Tel:: 888–828–0904 TTY: 866–569–1162
Fax: 703–738–4929

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
National Institutes of Health, DHHS
31 Center Drive, Rm. 9A06 MSC 2560
Bethesda, MD 20892-2560
www.niddk.nih.gov
Tel: 301-496-3583
TTY: 866-569-1162

National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
www.rarediseases.org
Tel: 203-744-0100
Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291